So we are finally home. This past week has been super crazy. Thomas had his tonsils out on Tuesday. He struggled from the beginning to eat anything. On Thursday he did really well, so we were hoping to have turned the corner. Unfortunately that was not the case. Friday morning started /out okay, but quickly started going downhill. By Saturday afternoon, we were having to force fluids in him by the syringe. Sunday morning dawned, only to find a lethargic and nearing non-coherent Thomas. He was refusing everything. He took his meds, then went right back to sleep. When he awoke a few hours later, he wouldn't even get out of bed. At this point, we knew he needed some help. We loaded up the car with both boys and enough stuff to hopefully get us through the afternoon and headed to the children's hospital ER.
He was quickly taken back around 11:30 (try 15 minutes from the time we signed in, had seen the triage nurse and were sitting in our room). It only took one look by the dr to confirm that he needed an IV started right away, He had lost 5 lbs in 5 days. He slept off an on. Nathanial and Brady were in and out of our room trying to keep Brady happy. After the initial bolust of iv fluids (a bolust I learned was a huge influx of fluids over a 30 minute period, then returning to a regular drip)and a dose of morphine, Thomas was still in pain and not drinking or eating anything. He wouldn't
At around 5:00, it was decided to call the ENT surgeon on call. After discussing our options with him, it was then determined that Thomas would not be able to be released until he could hold his own on fluids. They arranged for a bed upstairs. While Nathanial and Brady went home for things to entertain us overnight and into the next day, Thomas and Jodi were ushered up onto the Post-Op floor.
Well, needless to say, nothing much changed that night. They kept the fluids pouring in and tried to encourage him to drink but he refused. All day monday, we spent trying to encourage him to drink. Nothing worked. Around 4:00 the dr changed his pain meds. The next dose drew a dramatic change in Thomas. Withing 20 minutes he was drinking chocolate milk, eating pretzels dipped in pudding, and being cheerful. It was wonderful until he started exhibiting signs of a mild allergic reaction.
That put off another phone call to the on-call surgeon. They then decided to take this new drug off his orders and replace it with plain tylenol, since the tylenol with codeine wasn't helping either. I just about went into a panic. How could they take away what had made him feel better to the point that he was eating the first time in a week?
After calling my personal pharmacy information number (my mom), we came up with a possible solution. After speaking with the doctor, we got to keep the blessed Loratab, just coupled with a bit of Benedryl.
So we finaly figured it out. Thomas does not respond to Tylenol 3 or Morphine (it must be genetic on Jodi's side). And once the pain was under control, Thomas returned to normal.
So what I learned was not to doubt my instinct. I knew something more than just "not wanting to eat out of fear" was to blame. And I'm glad our wonderful nurse was able to convince the doctor to make it work.
We are very grateful to be home. We are also so grateful to have such an awesome children's hospital so close by. They were wonderful and truly made our time there almost enjoyable.